synics themes


Hi. This is my blog. Mostly I post pictures of things I love, have, or want to have. Enjoy!

It may be raining, but there's a rainbow above you
This is my beautiful cousin, Maria. Maria Webster is 5 and has a rare enzyme deficiency called ALG9 deficiency; also known as congenital disorder of glycosylation 1L (CDG-1L) or ALG9-CDG. She struggles with severe physical and cognitive delays and frequent seizures. She is content and beautiful, though is unable to walk and has very limited ability to communicate. There is currently no treatment for her condition. In February 2011, Foundation Glycosylation (the FoG) was established by Maria’s family to raise funds in order to support research for therapies targeting CDG.
Please reblog to help raise awareness and help save little children like Mimi <3
www.thefog.ca
You can also read more about Maria and her parents’ perspective in this article.
http://www.foundationsearch.ca/NewsArticles/1%5C119132363RR0001%5C119132363RR0001_20111101_Times%20and%20Transcript_New%20Brunswick%20girl%20struggles%20with%20rare%20enzyme%20disorder_SAINT%20JOHN%20REGIONAL%20HOSPITAL%20FOUNDATION%20INC..pdf

This is my beautiful cousin, Maria. Maria Webster is 5 and has a rare enzyme deficiency called ALG9 deficiency; also known as congenital disorder of glycosylation 1L (CDG-1L) or ALG9-CDG. She struggles with severe physical and cognitive delays and frequent seizures. She is content and beautiful, though is unable to walk and has very limited ability to communicate. There is currently no treatment for her condition. In February 2011, Foundation Glycosylation (the FoG) was established by Maria’s family to raise funds in order to support research for therapies targeting CDG.

Please reblog to help raise awareness and help save little children like Mimi <3

www.thefog.ca

You can also read more about Maria and her parents’ perspective in this article.

http://www.foundationsearch.ca/NewsArticles/1%5C119132363RR0001%5C119132363RR0001_20111101_Times%20and%20Transcript_New%20Brunswick%20girl%20struggles%20with%20rare%20enzyme%20disorder_SAINT%20JOHN%20REGIONAL%20HOSPITAL%20FOUNDATION%20INC..pdf


Posted 1 year ago, acquiring 309 notes and filed under: #beautiful #blind #disease #family #good cause #health #little girl #love #maria #research #thefog #thisisnotmyfairytaleendingg #hkangela
  1. secretcrazy reblogged this from honeywithalittlesoul
  2. truth4ndseek reblogged this from thisisnotmyfairytaleendingg
  3. partytillmyipoddies reblogged this from thisisnotmyfairytaleendingg
  4. likeaskyscraperrr reblogged this from livelife-likeitsa-party
  5. wishlikeneverbefore reblogged this from livelife-likeitsa-party
  6. dreamcatchersareforever reblogged this from thisisnotmyfairytaleendingg
  7. loveyou-like-xo reblogged this from thisisnotmyfairytaleendingg
  8. yawpitskelsey reblogged this from thisisnotmyfairytaleendingg
  9. nickkisfreshh69 reblogged this from secrets-in-the-summer
  10. wilddy0uth reblogged this from thisisnotmyfairytaleendingg
  11. whorannaround reblogged this from siberius
  12. puckyousirr reblogged this from chrisspenca
  13. fluorescentadolescenes reblogged this from siberius
  14. chrisspenca reblogged this from tolayyourarmourdown
  15. siberius reblogged this from thisisnotmyfairytaleendingg
  16. waitforsomething-better reblogged this from thisisnotmyfairytaleendingg
  17. youare-my-fairytale reblogged this from thisisnotmyfairytaleendingg
  18. katrinlehepuu reblogged this from thisisnotmyfairytaleendingg
  19. cutewittlepandas reblogged this from thisisnotmyfairytaleendingg
  20. loki-dhyunapivovarova reblogged this from thisisnotmyfairytaleendingg
  21. shutuup reblogged this from thisisnotmyfairytaleendingg
  22. happybeautifulpeople reblogged this from thisisnotmyfairytaleendingg
  23. fiaabaybe reblogged this from fuckoutmydamnface
  24. staygoldpaaam reblogged this from thisisnotmyfairytaleendingg
  25. fuckoutmydamnface reblogged this from thisisnotmyfairytaleendingg
  26. pray-love-smile-and-nodrama reblogged this from thisisnotmyfairytaleendingg
  27. one-step-and-its-all-over reblogged this from thisisnotmyfairytaleendingg
  28. mybr0kensmile reblogged this from livelife-likeitsa-party
  29. kel-leighh reblogged this from kiss-my-confidence
  30. shorthairduncare reblogged this from thisisnotmyfairytaleendingg
  31. karlieatrost reblogged this from thisisnotmyfairytaleendingg
  32. turnstogoldortosugar reblogged this from thisisnotmyfairytaleendingg
  33. livelife-likeitsa-party reblogged this from thisisnotmyfairytaleendingg
  34. barbieesthersays reblogged this from thisisnotmyfairytaleendingg
  35. kiss-my-confidence reblogged this from secrets-in-the-summer
  36. slutastic-universe reblogged this from thisisnotmyfairytaleendingg
  37. waitingforafairytale11 reblogged this from thisisnotmyfairytaleendingg
  38. babydootiehead reblogged this from thisisnotmyfairytaleendingg
  39. onemorechanceisalliwant reblogged this from thisisnotmyfairytaleendingg
  40. rebeccalandau reblogged this from thisisnotmyfairytaleendingg
  41. corysparty reblogged this from thisisnotmyfairytaleendingg
  42. sad-teens-with-happy-faces reblogged this from thedaysnotoveryet